Blog

Our collection of letters, thoughts, news, and stories

That Day… A Father’s Perspective

That Day… A Father’s Perspective

I just had to tell my son that he has cancer. Out of all the worst days of my life, this had to be the hardest one. He has faced pneumonia, a stroke, even fatty embolisms in his lungs. I thought that the hardest thing he would have to face would be the effects of DMD....

A Mother’s Perspective — By Traci Rico

A Mother’s Perspective — By Traci Rico

A Mother's Perspective On The First Birthday Without Her Son Written by Traci Rico Every year on Tanner's birthday, I would wake him up, cuddle him, and tell him the story of when he was born. When he was younger, he'd ask questions as I told him his story. As he got...

Blog Post #1 : An Aunties Perspective

Blog Post #1 : An Aunties Perspective

Watching a loved one struggle with illness can be one of the most challenging experiences a person can face. When that loved one is a teenager grappling with Duchenne muscular dystrophy (DMD) and cancer, the emotional toll can be overwhelming. Duchenne muscular...